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Advocacy

We connect children with limited resources to clinical trials advancing research into therapies for rare diseases. View our advocacy projects on the map below or learn more here.

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Durham, NC Duke University Dr. Joanne Kurtzberg Accelerating Clinical Trials for Rare Diseases

Relieving the financial burden for children participating in clinical trials for rare diseases

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Louisville, KY Sharing America's Marrow (S.A.M.) Sam Kimura
Alex Kimura
Taylor Shorten
Funding A Donor Journey

On a mission to increase the number of donors on the bone marrow registry

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